I'm still having a hard time figuring out what "significant new symptoms" means. Something weird happens to my body at least once a week even when I'm not relapsing and it's just not my style to be running to the doctor all the damn time. Apparently, I am officially mid-flare right now.
Thursday I finally caved and went to see the neuro after 3 straight days of my left arm failing it's duties. I've been having this problem with my left side for about a month, but it's been off and on. So I went to see dude, and he chastises me for not coming sooner after hearing my list of recent symptoms. And I had forgotten a couple because one is that I can't remember shit right now. I've been word fishing a lot lately which makes writing, blogging, and explaining the magic of radiology to my patients very frustrating. My legs have gone all wonky as well so I limped around the hospital all weekend, and no one had the balls to ask me why. My head hurts. A lot. But the doc says headaches are not correlated to MS. Huh?
So WE decided to forgo the IV solumedrol since I've probably already been relapsing for several weeks and I can't afford to take the time off for the infusions. I'm actually starting to feel a bit better but that's likely due to the fact that I have been off work a couple days. My next stretch is 55 hrs in 5 days, so we'll see how it goes in the middle of that. And while I've woken up feeling pretty good the last couple of days, by noon my heads athumpin, my left arm is stupid, I get all shuffle-footed, my neck aches, and it feels like nap-time straight through to bed-time. When it finally is bed-time, I'm suddenly wide-the-fuck-awake, and my legs start to jerk.
All this is causing me to have an attitude that's not super-conducive to doing Halloween projects with my short people, or getting stuff done around my house which is filthy. I've got an hour long joyride in the knockknockbangbang magnetic fun house to look forward to in two days as well. And for the first time, the script for the MRI simply states "MS" as the ordering diagnosis, so I'm guaranteed to get at least one, "But you look so gooooood!," from one of my colleagues in the MRI department at work. If the results are anything like I expect, I will have to start thinking about which meds to try next since the Avonex is obviously not working.
I'm grumpy and lonely coz my husband's working out of town this week and he's the only person in my life that can be nice to me without making me feel patronized or placated. My cop brother will be coming around in his squaddie though to "make sure everything's ok" and not at all because he wants to mooch off my wi-fi and freak out my neighbors.
Jeez, I'm just whining now. Think I'll call it quits.