Wednesday, August 27, 2008

I have MS and sometimes I like to bitch about it.

And sometimes I don't. I think I have something in common with other MSers, but I've never read a blog that expressed this particular symptom: I hate whining, but even more I hate feeling like a whiner. But then I also hate fatigue, numbness, being banned from hot baths, and stumbling over invisible objects left carelessly behind by the Embarrassment Elves (spiteful little buggers!).

Now, I know some may be offended by my reference to whining as a symptom, but whining is something I consider a symptom of the frustration that comes from your body not doing what you tell it to do. The overwhelming internet content regarding MS is dogmatic about the importance of maintaining a positive attitude while contemplating your fate status post Multiple sclerosis diagnosis. The only site I've come across so far with a healthy balance of comedy and cynicism is Multiple Sclerosis Sucks. Seriously, it's gotta be alright to vent in this forum, right? I mean, this doesn't count as whining if you can surf on by without being affected by my fleeting negativity. Sarcasm and satire are still the best ways to deal with stuff that sucks, aren't they?



Ha! I laughed when reading this.

There are PLENTY of MS Bloggers who mix satire and sarcasm with inspiration and hope.

I don't have the time right now, but I'll have to come back and give you leads on some of those MSers.

I blog at Brass and Ivory and at Health Central.

Welcome to the MS blogosphere although, yes, MS sucks!!


Lazy Julie said...

Hello Other Lazy Julie,
I regularly bitch and whine and feel conflicted about bitching and whining. I find that I can't get to the "let's look on the sunny side" place until I tunnel through the thick ugliness of the whiny feeling sorry for myself place. I actually don't trust people who automatically go to the bright side. How can they do that? I need to feel everything first. I support your right to bitch and whine and I see they as symptoms of being human. That having been said, MS gives us more foder for the bitching and whining. In my case, though, it also gives me more of an outlet to bitch and whine really really loudly!
Blog on.
Lazy Julie

Joan said...

PLEEEZE vent and whine here - then I won't feel so lonely when I start to do the same. It's especially bad when the fatigue is at its worst.

I just found your blog because you posted a comment somewhere, and I'm glad to meet you! You can find me at

I'm not writing a lot this week due to a film festival in town: just two movies wipes me out for the day. But I'll try to keep watching yours.

pUNKrOCKfairy said...

Thanks to all of you for the warm welcome. I'm lazy like the other Julie but I've convinced myself to blog more regularly. Catharsis is the name of the game, and I feel my in-person friends and family shouldn't shoulder the burden of my bitching alone. Thanks for helping them take up the load! (BTW, my arms are still strong, I'm willing to carry some weight too.)

PS- I LOVE Boston! I'm terribly jealous of your location!