tag:blogger.com,1999:blog-7136925847988611127.post1231906015963516266..comments2012-02-09T13:21:03.920-08:00Comments on No Empire, No More: No Empire, No More@whiskey.xray.yoga.zulu http://www.blogger.com/profile/13486715100955603014noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-7136925847988611127.post-67983997635587937952008-10-26T23:37:00.000-07:002008-10-26T23:37:00.000-07:00One of my favorite quotes (Alice Walker) goes some...One of my favorite quotes (Alice Walker) goes something like this (because MY mind has become "tarded" with MS and I CRS!)..."What the mind doesn't understand, it worships or fears".<BR/><BR/>I've spent my time "worshiping or fearing" my MS at both ends of the extreme over the past 5 years...either laying prostrate in the Temple of the MS gods, praying for *wellness*, *wholeness*, *denial*, *I have MS, but it doesn't have me*, yada, yada, positive crap, etc., or running stark-raving mad down the dark MS trail away from the unseen that is chasing me.<BR/><BR/>Finding physical balance with MS is a bitch, but achieving *emotional balance* between extremes is much more difficult for me. And, not unlike losing physical balance, I generally only recognize my emotional imbalance when I've already LOST it!<BR/><BR/>Anyway, what I'm TRYING to say here is simple: I hear ya. (And it probably would have been WAY EASIER on everyone if I had just typed those three words!)<BR/><BR/>Linda D. in SeattleBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-36402073180222089812008-10-24T15:12:00.000-07:002008-10-24T15:12:00.000-07:00Please stop by my blog and pick up your award,Weeb...Please stop by my blog and pick up your award,<BR/>WeebsWeeble Girlhttps://www.blogger.com/profile/00050260796290008851noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-73250291072154684332008-10-21T21:45:00.000-07:002008-10-21T21:45:00.000-07:00I found your blog on Maybe I'm just lazy. I am so ...I found your blog on Maybe I'm just lazy. I am so glad that I did. I totally can relate to your post, "No Empire, No More". I keep thinking that I will get used to my limitations. It has been 6 years since I was diagnosed and every day I am still surprised that I cannot run, can barely walk, etc. But, we must go on and not let this stupid disease beat us. I hope to hear from you someday. I too have a blog, not just about MS; I have many things I post about. It is my online journal.<BR/>Have a groovy day!<BR/>Shaun<BR/>www.roomswithaview.typepad.comShaunhttps://www.blogger.com/profile/10508987554150810119noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-71574297118204677282008-10-20T16:09:00.000-07:002008-10-20T16:09:00.000-07:00Thanks to all of you for your comments. This post...Thanks to all of you for your comments. This post was bumping around inside me for a long time and it's a relief to have it out and understood.@whiskey.xray.yoga.zulu https://www.blogger.com/profile/13486715100955603014noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-38803021314917245942008-10-18T22:17:00.000-07:002008-10-18T22:17:00.000-07:00Please come accept your award.Please come <A HREF="http://brassandivory.blogspot.com/2008/10/gratitude-with-attitude.html/" REL="nofollow">accept your award</A>.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-88380163505847528772008-10-18T18:11:00.000-07:002008-10-18T18:11:00.000-07:00Hey there, thanks for stopping by my blog and now ...Hey there, thanks for stopping by my blog and now I finally had the chance to come read you!<BR/><BR/>I know everything you mean in the words of this post. I am a teacher and it scares the bejeepers out of me when I forget and I forget all sorts of things.<BR/><BR/>I was reading aloud the other day and said "Buttload" instead of Boatload which made me and all of them laugh. What a flipping dork I am now. I forget what I am doing sometimes when I am driving. Just little moments here and there where I wonder what the heck I am doing and why I am doing it.<BR/><BR/>Hugs to you,<BR/>WeebsWeeble Girlhttps://www.blogger.com/profile/00050260796290008851noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-35082985002192923912008-10-17T19:12:00.000-07:002008-10-17T19:12:00.000-07:00It may be lame, but I indentify myself with my bra...<I>It may be lame, but I indentify myself with my brainy-ness. What I'm really afraid of is: Who will I be when I'm not smart anymore? Who will take up the responsibilities of my mind? Will I ever learn to trust someone else to run the Empire?</I><BR/><BR/>I could have written this paragraph at one time. I've never been physically/athletically talented, but I was always the quiet "smart" one. And my identity is so tied up with my music, and MS has threatened that many times now, I'm still not sure who I am becoming.<BR/><BR/>As my mind, hands, eyes, hearing, balance all seem to come and go and not come quite back, it takes away any sense of security, that's for sure. You are not alone and many understand exactly what you are saying.<BR/><BR/>Lisa<BR/><BR/>(btw...reading the white lettering on black background is extremely difficult to these MS eyes.)Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-2184095547501900022008-10-13T17:56:00.000-07:002008-10-13T17:56:00.000-07:00Nice to find another Floridian in the MS blog worl...Nice to find another Floridian in the MS blog world. (I can't wait for that cold front)<BR/>Your post really touched me. Redefining who I am after MS was the hardest hurdle for me, even harder than the meds and flares. It's hard to explain, but in a way, I feel that I have gained at least as much as I have lost. It just wasn't anything I could ever have expected.Bubbiehttps://www.blogger.com/profile/00243081013090420013noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-62283263771694066222008-10-09T08:38:00.000-07:002008-10-09T08:38:00.000-07:00That last line is Phenomenal. "Who will run the E...That last line is Phenomenal. "Who will run the Empire?" God damn I'm glad you wrote that, and I sorry I didn't. I've been wondering about the title of the blog. I thought it was great, figure it was a lyric somewhere, but I really dig it. <BR/><BR/>I know you read what I wrote at my blog, so I am picking up what you're putting down. <BR/><BR/>I didn't address cognictive function over at my spot, but it is one of the scariest things before us. I already stutter a bit, which is something I never did before. I have always had a pretty good vocabulary, I was always able to talk a good game, but these days I find myself losing words left and right. It's so so frustrating. More times than not my time is spent trying to figure out other words for what I am trying to say. I am so fearful that this is going to get worse. <BR/><BR/>Although, on the other hand, you can look at my Aunt who has ALS. a horrible disease that robs you of everything but your mind. So my Aunt has sat in a chair totally immobile for the last 6 years, unable to talk or interact with anyone. It breaks my heart for her. <BR/><BR/>Perhaps if this is our fate losing our sense of perception might have a different significance. A very selfish one, but different none the less. <BR/><BR/>Lazy Julie is right though, we don't know what tomorrow will bring, we just gotta enjoy what we got. For all we know we could get hit by a bus tomorrow. Although, we already sorta did. It's just a really big bus that is moving very slowly. It still hurts though.Bald Benhttps://www.blogger.com/profile/15671676120414806747noreply@blogger.comtag:blogger.com,1999:blog-7136925847988611127.post-35139671737649399962008-10-08T20:30:00.000-07:002008-10-08T20:30:00.000-07:00While reading your post, my eyes started welling u...While reading your post, my eyes started welling up. By the time I finished, tears were rolling down my cheeks--not because I feel sorry for you, but because I know EXACTLY how you feel. <BR/><BR/>When people ask me how MS has changed me I tell them that it has taken away my sense of invincibility. It's taken my freakish strength and my belief that I will always be this way. Not so, not so.<BR/><BR/>I do have Optic Neuritis and I wonder, if my eyesight keeps getting worse, how will I drive my kids to school and get to my job that is not on public transportation. I worry about work and money and insurance and.........<BR/><BR/>And then, I realize we all have just today. And today, I'm glad I found your blog and read your post.<BR/><BR/>Lazy JulieJulie M. Bakerhttps://www.blogger.com/profile/13202264108356942158noreply@blogger.com